SAVE THE DATE – Friday 13 November – Dublin, Ireland
a rare disease themed Associated Event of Ireland’s Presidency of the Council of the European Union

More than 30 million people across Europe live with a rare disease. This event explores how research and innovation can become the standard of care for all rare diseases — building momentum for a coordinated EU Action Plan, examining the Biotech Act’s role in strengthening Europe’s innovation base and competitiveness, and demonstrating what happens when patients are true partners.

We will demonstrate that with the right policy and with patients as partners in research and innovation, discoveries move more quickly from bench to bedside, innovation becomes more effective, and better outcomes become possible for people living with rare diseases. Europe can regain leadership in rare disease innovation. 

Full programme and registration details to follow.