on February 28 #LightUpforRare
join the Global Chain of Lights
Everyone can participate! Show solidarity with the rare disease community and light up or decorate your home with the Rare Disease Day colours at 7pm on Tuesday February 28. You can use garlands, candles, disco lamps, colourful decorations…..
Let your creativity shine!
Take a picture of yourself with your chosen lighting and share on your social media using #LightUpforRare and #RareDiseaseDay.
The Rare Disease Day team at EURORDIS have prepared a really useful video, information and instructions for you.
We are calling on everyone to illuminate buildings across the world in support of the rare disease community. Check out our toolkit.
You can help us to to Light Up for Rare on February 28 and build the chain of lights across Ireland. Use this template email to ask
- Ask your employer
- Ask your local council
- Ask landmark buildings and sites across Ireland
- Ask local healthcare facilities
Don’t forget to enlist local media to help spread the word on any buildings that are being lit up. They make for great photos too…..