Thank you very much to everyone who helped make Rare Disease Day 2019 such a success in Ireland. Without all of your efforts and contributions we would not have had the impact that we had. In the run up to Rare Disease Day (Feb 28) our community appeared in the press, on the radio and on TV.
A special word of thanks to all who told their stories (see below) to help raise awareness of the impact of living with a rare disease. It is these stories that everyone remembers, and it is only by telling our stories and raising awareness that we will ensure that our voices are heard by those policy and decision makers that can influence and dictate the reforms that we demand.