Round Table of Companies

In 2018 Rare Diseases Ireland established the RDI-RTC (Rare Diseases Ireland Round Table of Companies). The RDI-RTC is a “club” of companies with a common interest in rare diseases and orphan products. The ‘club’ meets twice a year. 

The RDI-RTC provides a unique opportunity for companies across the spectrum of products and services to engage with experts in the rare disease community in Ireland addressing topics of mutual interest. Membership of the RDI-RTC reflects a company’s leadership and commitment to the identification, treatment, and cure of rare diseases in Ireland through programs of education, advocacy, research, and service.

The RDI-RTC provides unique opportunities for industry to engage with rare disease patient organisations to identify and prioritise challenges facing the Irish rare disease community. Click on the image to see membership benefits. All members must sign up to the Code of Conduct as part of the membership process. If you would like to learn more and to join the RDI-RTC please contact us at advcoacy@rdi.ie. 

RTC Membership

Meeting Topics & Schedule

The Round Table of Companies meets two times each year, typically in May and November. Past meetings have looked at topics such as

  • The role of the National Rare Diseases Office – guest speaker Geraldine Sweeney, Programme Manager at NRDO
  • The role of Europe in Irish Rare Diseases Policy – guest speakers Yann Le Cam, CEO EURORDIS-Rare Diseases Europe & Avril Daly, CEO Retina International and President EURORDIS-Rare Diseases Europe
  • Clinical Trials in Ireland – the Rare Disease Clinical Trials Network – guest speakers Prof Rachel Crowley, Endocrinologist at St Vincent’s University Hospital and Clinical Lead RD-CTN,  Dr Cormac McCarthy, Respiratory Consultant at St Vincent’s University Hospital and Clinical Lead RD-CTN & Eibhlin Mulroe, CEO Cancer Trials Ireland.

Upcoming meetings

November 17 2023

  • Proposed revision to the draft EU pharma legislation

May 2024

  • TBC

If you have ant questions or would like to enquire about attending an RTC meeting please contact RDI at advocacy@rdi.ie