‘Rari Tea & Toastie Gathering’

11am Thursday February 25

As Rare 2030 reaches its conclusion we will hear about policy recommendations for people living with a rare disease from Avril Daly, VP EURORDIS – Rare Diseases Europe. Rare 2030 is a foresight study led by EURORDIS-Rare Diseases Europe that gathered the input of a large group of patients, practitioners and key opinion leaders to propose policy recommendations that will lead us to improved policy and a better future for people living with a rare disease in Europe.


in partnership with: 

Northern Ireland Rare Disease Partnership